Of course, if the patient’s condition requires it, or if the person is alone, a hospice is indispensable. But currently, demand is so high and beds so scarce that the question of ‘shame’ fades into the background against the backdrop of actual need.
Ekaterina: Do patients’ relatives continue to support you after their loved ones pass away? Do they become ‘friends of the hospice’?
Mariam: Usually, no. Sometimes they come to thank us or bring treats, but they rarely become regular donors. This may be because many of our patients come from underprivileged backgrounds and their families simply lack the financial means to provide ongoing support.
Ekaterina: We have an
interview with Irakli Vetsko, head of the
Firefly World children’s hospice, in which he discusses the specifics of paediatric palliative care in Georgia. In your view, is there a difference in how society perceives children compared with the elderly?
Mariam: It is probably somewhat easier to raise funds for children: people subconsciously hope for a miracle. Yet palliative care—whether paediatric or adult—is a field where there is no hope of a cure. It is psychologically difficult for many to help in a situation where the person ‘will die anyway’. This requires a deep understanding of the value of those final days or months. Usually, this is realised by those who have experienced the loss of a loved one. We still have a lot of educational work ahead of us.
Ekaterina: What is the most pressing issue facing the palliative care system in Georgia right now: funding, legislation, or public awareness?
Mariam: Funding is likely the first priority. We are catastrophically short of inpatient beds and of resources to expand home care. Legislation and public awareness are equally vital. However, the most difficult issue is the shortage of qualified, dedicated nurses and palliative care professionals. Many skilled specialists emigrate from Georgia because salaries are higher abroad and they need to provide for their families. I believe this is our greatest challenge right now.
In fact, all these aspects are inextricably linked: without public understanding, there will be no movement at the top; without movement at the top, there will be no funding; and without funding, there will be neither staff nor public attention. The experience of Europe and the US shows that palliative care must be funded from multiple sources: the state, donors, insurance companies, and volunteers.
To my knowledge, in Spain, palliative care is funded half by the state and half by
one of the largest banks. It is very important for our private sector to recognise its importance as well.
Ekaterina: Tell us about your training centre: how many people are involved in the project?
Mariam: The team is small, comprising three or four permanent instructors. Two lead the core care courses, and we also have specialists in communication and first aid. For internal staff training, we invite psychologists and coaches. The centre offers both state-certified programmes and our own short-term courses in dementia, kinesthetics, and wound care.
Ekaterina: Who are your students?
Mariam: Professionals—both those who want to work with us and employees of other organisations—as well as patients’ relatives. We run state training sessions once a quarter and short courses almost every month. We post announcements on social media, and the groups fill up very quickly.
In addition, we are active in the regions: we trained teams in
Akhaltsikhe,
Racha, and
Borjomi ahead of the launch of their mobile palliative services. This was a large-scale project implemented with support from the
UNDP.