The hospital administration insisted on a tracheostomy. The boy's mother rang me in tears. I asked her not to sign the consent form and spent a long time persuading my colleagues to try a different approach: to give the child a chance to go home. We sourced the necessary equipment, removed the breathing tube, avoided surgery entirely, and discharged him.
He is now at home with his family. Thanks to home respiratory support, he has not been admitted to intensive care since then. When I see the photos his mother sends me, I tell my colleagues: ‘This is what a victory feels like.’ We did not cure the disease, but we gave him back his childhood.
In intensive care, death is the enemy. In palliative medicine, I learnt that patients' families can be grateful to you even after a patient has died. I came to understand that sometimes the best thing a doctor can do is stop. Intensive care and palliative medicine are two sides of the same coin. In one, you learn to fight; in the other, you learn to let go. My rescuer syndrome never went away. Only now do I work not towards a heartbeat, but towards a child's right to live free from pain, surrounded by those they love.