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The November edition examines how palliative care associations shape the future of the field through partnerships, data, and practical decision-making. You’ll discover how global solutions can be adapted regionally, find tools for engaging with government and society, and learn from associations working in resource-limited settings.
This digest compiles five insightful materials on strategies, models, and concrete actions that help associations become agents of change. We hope these examples support your work and inspire new ideas.
If you wish to continue any of the topics listed below in the form of a discussion or webinar, please do not hesitate to contact us at info@paced.org.uk.
The November edition examines how palliative care associations shape the future of the field through partnerships, data, and practical decision-making. You’ll discover how global solutions can be adapted regionally, find tools for engaging with government and society, and learn from associations working in resource-limited settings.
This digest compiles five insightful materials on strategies, models, and concrete actions that help associations become agents of change. We hope these examples support your work and inspire new ideas.
If you wish to continue any of the topics listed below in the form of a discussion or webinar, please do not hesitate to contact us at info@paced.org.uk.
If you are a palliative care specialist representing one of the PACED countries and wish to join our community—please fill out this form, and we will contact you promptly.
WHPCA Practices for National Palliative Care Associations
The WHPCA Impact Report 2022–2024 outlines the Alliance's key projects and initiatives over these two years. Although WHPCA operates globally, many of the report's approaches can be adapted and used by national associations.
The Advocacy Guide: Palliative Care & UHC, along with its accompanying training webinar, provides a straightforward, practical foundation for engaging with government structures, advocating for palliative care, and demonstrating its economic importance.
The Palliative Care Voices project emphasises the importance of involving patients and family members in research and advocacy campaigns—this enhances trust in initiatives and expands their reach.
In collaboration with WHO, WHPCA created the second edition of the Global Atlas of Palliative Care. This resource supports associations in communicating with ministries of health through reliable data on service needs, resource planning, opioid procurement, tariffs, and more.
The annual World Hospice & Palliative Care Day shows how an easy, inexpensive online event can connect communities across the globe and spotlight key issues in palliative care.
Overall, this report functions not only as a summary of WHPCA’s work but also as a collection of tools and ideas that can motivate and support national associations in their activities.
Link to the Report: https://thewhpca.org/resource_category/annual-report/
The WHPCA Impact Report 2022–2024 outlines the Alliance's key projects and initiatives over these two years. Although WHPCA operates globally, many of the report's approaches can be adapted and used by national associations.
The Advocacy Guide: Palliative Care & UHC, along with its accompanying training webinar, provides a straightforward, practical foundation for engaging with government structures, advocating for palliative care, and demonstrating its economic importance.
The Palliative Care Voices project emphasises the importance of involving patients and family members in research and advocacy campaigns—this enhances trust in initiatives and expands their reach.
In collaboration with WHO, WHPCA created the second edition of the Global Atlas of Palliative Care. This resource supports associations in communicating with ministries of health through reliable data on service needs, resource planning, opioid procurement, tariffs, and more.
The annual World Hospice & Palliative Care Day shows how an easy, inexpensive online event can connect communities across the globe and spotlight key issues in palliative care.
Overall, this report functions not only as a summary of WHPCA’s work but also as a collection of tools and ideas that can motivate and support national associations in their activities.
Link to the Report: https://thewhpca.org/resource_category/annual-report/
Five Years of Systematic Effort by the Kenya Hospice and Palliative Care Association
This article recounts the experience of the Kenya Hospice and Palliative Care Association (KEHPCA), which spent five years steadily working to incorporate palliative care into the country’s public health system. The association combined national-level advocacy with efforts within individual institutions, trained healthcare professionals, and supported hospitals in establishing palliative care services in practice. The KEHPCA case clearly demonstrates that meaningful progress is possible even in resource-limited settings when a clear strategy and strong partnerships are in place.
The results are notable: palliative care became officially incorporated into public hospitals, secured consistent government funding, and over 200 healthcare workers were trained. This serves as an inspiring example of how a national association can gradually influence the health system and broaden access to vital palliative care for patients.
Read more: https://pmc.ncbi.nlm.nih.gov/articles/PMC4970621/
This article recounts the experience of the Kenya Hospice and Palliative Care Association (KEHPCA), which spent five years steadily working to incorporate palliative care into the country’s public health system. The association combined national-level advocacy with efforts within individual institutions, trained healthcare professionals, and supported hospitals in establishing palliative care services in practice. The KEHPCA case clearly demonstrates that meaningful progress is possible even in resource-limited settings when a clear strategy and strong partnerships are in place.
The results are notable: palliative care became officially incorporated into public hospitals, secured consistent government funding, and over 200 healthcare workers were trained. This serves as an inspiring example of how a national association can gradually influence the health system and broaden access to vital palliative care for patients.
Read more: https://pmc.ncbi.nlm.nih.gov/articles/PMC4970621/
Coalition Approach to Enhancing Palliative Care: The Example of Canada
The Blueprint for Action 2025–2030 demonstrates how coalition-led initiatives can drive change in a national palliative care system. The Palliative Care Coalition of Canada (PCCC), which comprises over 30 organisations, strives to improve the quality and accessibility of palliative care for all Canadians. Although significant progress has been made over the past 25 years, only about 58% of those who need palliative care actually receive it—and often only in the final weeks of life.
The new PCCC plan for 2025–2030 presents a clear and achievable strategy for further development. It is centred around four main priorities: a well-informed and engaged public, prepared and supported professionals, the dissemination of data and knowledge to enhance quality of care and quality of life, and equitable access to palliative care services for all. This document offers a model that can form the basis for long-term systemic change. It is worth reading for anyone involved in shaping palliative care strategies within their country or organisation.
You can download the document here: https://www.pallium.ca/palliative-care-coalition-of-canada-pccc-2/
The Blueprint for Action 2025–2030 demonstrates how coalition-led initiatives can drive change in a national palliative care system. The Palliative Care Coalition of Canada (PCCC), which comprises over 30 organisations, strives to improve the quality and accessibility of palliative care for all Canadians. Although significant progress has been made over the past 25 years, only about 58% of those who need palliative care actually receive it—and often only in the final weeks of life.
The new PCCC plan for 2025–2030 presents a clear and achievable strategy for further development. It is centred around four main priorities: a well-informed and engaged public, prepared and supported professionals, the dissemination of data and knowledge to enhance quality of care and quality of life, and equitable access to palliative care services for all. This document offers a model that can form the basis for long-term systemic change. It is worth reading for anyone involved in shaping palliative care strategies within their country or organisation.
You can download the document here: https://www.pallium.ca/palliative-care-coalition-of-canada-pccc-2/
Scientific Insights for Systematic Change
In January, the European Association for Palliative Care (EAPC) released the findings of an important study analysing which needs of people with serious illnesses remain unmet—from symptom control to psychosocial support and care coordination. The work emphasises the elements of palliative care that have the greatest effect on patients’ quality of life and identifies the main obstacles leading to delayed access to care.
These findings can strongly support discussions with ministries and government bodies. They illustrate why integrating palliative care into both primary and specialised healthcare is essential, which areas should be prioritised, and how system-level decisions directly affect patient outcomes. We encourage you to examine this publication more closely—it can serve as a valuable resource for advocacy, strategic planning, and educational initiatives. The study highlights the patients' needs that must remain at the heart of policy and practice.
Read the study results: https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370%2825%2900335-9/fulltext
In January, the European Association for Palliative Care (EAPC) released the findings of an important study analysing which needs of people with serious illnesses remain unmet—from symptom control to psychosocial support and care coordination. The work emphasises the elements of palliative care that have the greatest effect on patients’ quality of life and identifies the main obstacles leading to delayed access to care.
These findings can strongly support discussions with ministries and government bodies. They illustrate why integrating palliative care into both primary and specialised healthcare is essential, which areas should be prioritised, and how system-level decisions directly affect patient outcomes. We encourage you to examine this publication more closely—it can serve as a valuable resource for advocacy, strategic planning, and educational initiatives. The study highlights the patients' needs that must remain at the heart of policy and practice.
Read the study results: https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370%2825%2900335-9/fulltext
Looking Ahead at the Indian Model of Palliative Care
This article offers a bold outlook on the future of palliative care in India and the potential role of the Indian Association of Palliative Care (IAPC) as an emerging global leader in the field. The author emphasises that India’s size—its large population, significant disease burden, and varied medical and cultural contexts—makes every successful IAPC initiative a form of global ‘stress test’. If a model works in India, it often proves applicable to many other health systems.
A notable strength of IAPC is its focus not on vague statements but on concrete, practical actions: ensuring that every hospital with an ICU has a palliative care service, allocating about 1% of beds for long-term care, and establishing home-based services within roughly a 5-km radius of hospitals. The author connects the association’s leadership with its ability to translate research findings into everyday clinical practice—shifting from evidence-based insights to real, operational standards of care.
Read the article: https://jpalliativecare.com/looking-ahead-assured-of-a-vibrant-indian-association-of-palliative-care-to-lead-the-world-of-palliative-care/
This article offers a bold outlook on the future of palliative care in India and the potential role of the Indian Association of Palliative Care (IAPC) as an emerging global leader in the field. The author emphasises that India’s size—its large population, significant disease burden, and varied medical and cultural contexts—makes every successful IAPC initiative a form of global ‘stress test’. If a model works in India, it often proves applicable to many other health systems.
A notable strength of IAPC is its focus not on vague statements but on concrete, practical actions: ensuring that every hospital with an ICU has a palliative care service, allocating about 1% of beds for long-term care, and establishing home-based services within roughly a 5-km radius of hospitals. The author connects the association’s leadership with its ability to translate research findings into everyday clinical practice—shifting from evidence-based insights to real, operational standards of care.
Read the article: https://jpalliativecare.com/looking-ahead-assured-of-a-vibrant-indian-association-of-palliative-care-to-lead-the-world-of-palliative-care/
DIGEST